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With the help of the National
Lymphedema Network (NLN), Karin Douglas, a breast
cancer survivor and lymphedema activist, has
created a Lymphedema Alert bracelet and necklace to protect breast cancer survivors from
receiving treatment on their affected arm. Lymphedema (chronic swelling) of the arm is a
side effect of breast cancer surgery, particularly if some of all of the axillary
(underarm) lymph nodes were removed.
The Lymphedema Alert bracelet is made
of non-allergic stainless steel with a link chain that stretches over the wrist. The
bracelet contains the words, "No Blood Pressure No Needles in this Arm"
to alert a healthcare professional of the patients risk of lymphedema. According to
the National Lymphedema Network, the Lymphedema Alert bracelet helps breast cancer
survivors increase their chances of remaining lymphedema-free or keep their existing
lymphedema under control. The bracelets also help educate the community about the
seriousness of lymphedema.
Lymphedema of the arm is the chronic
swelling or feeling of tightness around the arm or hand caused by the accumulation of
lymphatic fluid in spaces between arm tissue. During axillary node dissection (lymph node
removal), the normal drainage of lymph from the arm is disrupted, increasing the chance
for fluid build-up. It is estimated that 10% to 20% of breast cancer patients who undergo
axillary node dissection develop lymphedema.
According to the National Lymphedema
Network, treatments to the affected arm that could trigger or worsen lymphedema of the arm
may include blood pressures, injections, blood draws, and other medical tests. Patients
should also receive detailed instructions from their physicians on when and how to
exercise after a mastectomy (breast removal) and lymph node removal. Often after breast
surgery and axillary node dissection, surgeons will encourage patients to do arm exercises
to reduce stiffness and prevent lymphedema.
Other actions that may help prevent
lymphedema include:
- Avoiding lifting, pushing, or pulling
with the affected arm.
- Avoiding repetitive movements with the
affected arm.
- Wearing soft pads under the arm after
axillary node dissection.
Click here to learn about other ways to
help prevent lymphedema.
For patients who have had lymph nodes
removed on one side of the body, the lymphedema bracelet should be worn on wrist of the
arm involved in surgery, denoting that surgery was performed on that side of the body. For
patients who had bilateral lymph node removal, the bracelets can help make healthcare
professionals aware of the patients surgical history and proceed with caution when drawing
blood or performing other medical procedures on that limb.
In addition to Lymphedema Alert
bracelets, Douglas has also created Lymphedema Alert necklaces for patients with
lymphedema of the lower extremities. The necklaces are similar to the bracelets and
include a wallet size care with detailed instructions on how to care for the affected
limb. As with the bracelets and necklaces, the wallet cards are designed to help alert
healthcare professionals if the patient is unable to communicate with them.
The Lymphedema Alert bracelets or
necklaces may be ordered from the National Lymphedema Network (a nonprofit organization). Click here to order a
Lymphedema Alert bracelet or necklace.
Additional Resources and
References
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